Lost and Found

                My mom use to never look at things before she threw them away. She was cleaning her room one day and had a trash back that she asked me to throw out witch I did without question.  Several hours passed and she was in her room looking for something.

          She came out and said she couldn’t find the SSI checks that came in the mail a few days before. So I asked her where she had them last and she said they were in her room. So I went in and helped her look once again. We look in every drawer purse and pockets she had. Then she said I hope I didn’t throw them away.

          So I went out to the trash in that dark and looked through the bag I just threw out. Now going through trash in not something I would normally do. But this was a lot of money we were talking about. So I tore open the trash bag and my eyes focused on 4 yellow envelopes. I picked them out the trash and ran back inside.

          As I handed mom the checks she hugged me very tightly and said thank you over and over again. The following morning went to the bank to deposit the checks. I will never forget the night. Not in a million years. 

SSI Disability and Medicare

                Why is it so difficult to claim SSI Disability of NF1 is beyond me. Yes I know we can work and lead normal lives but it’s hard when you go in for a job interview and the first thing employers notice are the bumps on your face, arms, or hands.                 

                You might have the best qualifications for the job and then you hear nothing. You give them a call and ask how thing went and they tell you that there still review applicants. And It’s hard to tell if they’re lying to you.

                And people with NF1 and 2 should be able to qualify for Medicare. Most of us can’t afford or want be covered by insurance. Medicare can help us seek treatment before more complications arise. My mom as you know got cancer due to her NF1. I know that It could happen to me but I want to be about to catch it before it gets to that point. We all should.

                Well church is about to start. So I will leave you with this. God is the one true doctor. He is the healer of more then your body. He is also the healer of your soul. And if you want I suggest and want to see a great church service online go to www.fbchammond.com  I promise you will enjoy everything you hear.

My God Bless you

Robert A. Pye

The Looks

     Have you ever had that feeling someone was staring at you and you had no idea why. Well I do. When I was younger I never had that problem. No bumps or dark spots at all. My mom had that bumps but no one in our neighborhood seemed to care. She was just another normal person who lived in the neighborhood. I had an aunt who stayed over on the next block. She also had NF1 and like my mom no one seemed to care.

     The 70's was a good decade to live in for me. Some of the 80's were to until after the bumps started to form. People in school thought I had the measles or chicken pox. I told them if I did I wouldn't be here now would I. They just shrugged it off and left me alone after that. I had some great friends in 7th and 8th grade. We would play tag right before school started. The day of graduation I went over to my group of friends and said good bye to them. Some shock my hand. Some hugged me and told me good luck. It was then I realized that most of them never asked me about my bumps. As I walked way and prepared to leave junior high a smile came to my face. I really enjoyed those years.

   

HAPPY NEW YEAR

I WANT TO WISH ALL MY FOLLOWERS A VERY HAPPY NEW YEAR. MAY THIS BE THE YEAR WE COME ONE STEP CLOSER ON FINDING A CURE FOR NF1

GED TEST

     Well got the results back from my G.E.D test and I passed everything but the math section. I know I was going to have problems with that part. But still I was surprised I did so very well on everything else. I have a learning disability because of the NF1 and I went to special ed classes when I was in grade school and most of high school.
     Math had always given me trouble ie algebra and geometry but I know I can pass it if I study more and more each day. I know someone who has offered to help me study so I have to let me know when and where. (: . I know I can't blame everything on NF. We are an unique people with a unique disorder and we strive to live on each and every day and nothing will ever stop us. And when a cure is found we will show the world with what we are truly capable of.

GED TEST

Well I took the GED test. And I must say it seemed pretty easy. I think I passed it with no problmes what so ever. I might have had a problem with the essay part but we'll see.

The beginning.

This is my story. As I was going up I never really wondered why my mom "God Bless Her Soul" (November 24 1944 to March 20th 2011) had bumps all over her. She was my mom after all. Anyway as I grew older I noticed I was forming the small bumps as well. But still I just blew it off. 

Now there was a public pool near my old grade school and every summer my brother and our friends would go swimming. It was fun until on day a life guard noticed the bumps on my body and kicked me out of the pool. He said I couldn't come back unless I got a doctors statement saying I was contagious. I was so upset that I cried all the way home and told my mom and dad. Of course they were not happy and the next day they took me to the doctor. 

The doctor was not happy when I told him what happened and gave me a not to give to the life guard. He said if he didn't allow me into the pool that we could sue. After that we came home and I went back to the pool and give the guard the note. He allowed me to swim for that day forward. 

I do understand he was doing his job but it still hurt. Oh and I have forgiven him. (: